Recent Event Highlights: Quinn Bradlee Reaches Out to Friends With Disabilities, Teralynn the AMAZING, Quinn Bradlee: A New Kind of Facebook, for Young Adults with Learning Disabilities, Life With VCFS Part 1, Life With VCFS Part 2, Life With VCFS Part 3, and 11 more...
Created by dipity on Apr 3, 2009
Last updated: 05/28/09 at 03:05 PM
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...is 26 years old and grew up with Velo-Cardio-Facial Syndrome (VCFS). He created the site to alleviate feelings of depression he knows first-hand young adults with learning disabilities go through. He'll be really involved with the site too- regularly blogging,...
We currently do not have a regular table booster seat so we're stuck with using an outdated car seat...I'm so creative! LOL Her speech has improved a little since her last surgery in Sept 08.
PLEASE ENJOY AND COMMENT THIS STORY IS A LITTLE DIFFERENT MILEY HAS A DISORDER CALL DOWN SYNDROME I THOUGHT I WOUL MAKE I HAVE A LITTL DISABILITIE CALLED VCFS STANDS FOR VILO CARDIO FACIAL SYNDROME SO I THOUGHT I WOULD MAKE ONE TO SHOW WHAT ITS LIKE TO HAVE A SYNDROME ITS NOT A NILEY ITS GOING TO BE A JILEY
My little escape artist.
Meet Asah he was born with a genetic disorder Velocardiofacial syndrome (VCFS) and Tetralogy of Fallot 1.Pulmonary Stenosis 2. Ventricular Septal Defect (VSD) 3. Overriding Aorta 4. Right Ventricular Hypertrophy Asah had two major heart surgeries already he is a brave little boy who continues to defy all odds!!! myspace.com/heartsforasah
...I was later diagnosed with Velo-Cardio Facial Syndrome, which is the second most common syndrome in America after Down 's syndrome. VCFS is characterized by 30 different features, some of the most common of which are heart defects, distinct facial characteristics,...
She was playing @ Chick Fil A.
Teralynn dancing to Thin Lizzy
MY BABY GIRL that was born with 22q11.2 Deletion Syndrome aka DiGeorge Syndrome or VeloCardioFacial Syndrome. www.22q.org www.vcfsef.org Teralynn's symptoms: Ventricular Septal Defect Hypocalcemia Submucous Cleft Palate Velopharyngeal Insufficiency Retrognathia Microcephaly Small Protuberant, cup-shaped ears Narrow external ear canals Mild developmental delay Umbilical Hernia Nasal vomiting Severe articulation impairment Hypernasality Mild growth deficiency, relative small stature Joint ...
This is just a clip on how she sounds when she talks. Please excuse the brief yelling in the background it was a bedtime battle with Destini. Teralynn has 22q11.2 DS and a cleft palate.
...holiday available at Justgiving: The page was created by Max Appeal, the UK charity supporting families with DiGeorge/ VCFS/ 22q11 syndrome, and is fully supported by Sam and Ben Beedles on behalf of Jasmine. Please donate if you can! thank you for commenting...
VCFS stands for: Velo Cardio Facial Syndrome Part 1 of 3
VCFS stands for: Velo Cardio Facial Syndrome Part 2 of 3
VCFS stands for: Velo Cardio Facial Syndrome Part 3 of 3
...Bradlee's reaction is the same many have upon learning about VCFS, the second-most-common genetic syndrome after Down syndrome. VCFS advocates hope to educate people about the syndrome to promote research and detection. Bradlee, now 25 and an aspiring filmmaker,...
...was." Neither did John's pediatrician. It took years of testing, and the right specialist to unlock the mystery: VCFS. Next to Down syndrome, it is the most common genetic disorder. "It was devastating, too, to know that your child now all the sudden has a...