dipity

Recent Event Highlights: Quinn Bradlee Reaches Out to Friends With Disabilities, Teralynn the AMAZING, Quinn Bradlee: A New Kind of Facebook, for Young Adults with Learning Disabilities, Life With VCFS Part 1, Life With VCFS Part 2, Life With VCFS Part 3, and 11 more...

Created by dipity on Apr 3, 2009

Last updated: 05/28/09 at 03:05 PM

• Quinn Bradlee Reaches Out to Friends With Disabilities
  Mar 31, 2009 12:41 PM

  Excerpt ...is 26 years old and grew up with Velo-Cardio-Facial Syndrome (VCFS). He created the site to alleviate feelings of depression he knows first-hand young adults with learning disabilities go through. He'll be really involved with the site too- regularly blogging,... Source Info mediabistro.com Related Topics
  http://www.mediabistro.com/fishbowlDC/on/quinn_bradlee_reaches_out_to_friends_with_disabilities_112882.asp?c=rss

• Teralynn's snack time
  Mar 15, 2009 1:19 PM

  We currently do not have a regular table booster seat so we're stuck with using an outdated car seat...I'm so creative! LOL Her speech has improved a little since her last surgery in Sept 08.

• new trailor called: I PRAY
  Mar 10, 2009 9:31 AM

  PLEASE ENJOY AND COMMENT THIS STORY IS A LITTLE DIFFERENT MILEY HAS A DISORDER CALL DOWN SYNDROME I THOUGHT I WOUL MAKE I HAVE A LITTL DISABILITIE CALLED VCFS STANDS FOR VILO CARDIO FACIAL SYNDROME SO I THOUGHT I WOULD MAKE ONE TO SHOW WHAT ITS LIKE TO HAVE A SYNDROME ITS NOT A NILEY ITS GOING TO BE A JILEY

• Teralynn the AMAZING
  Dec 2, 2008 7:52 PM

  My little escape artist.

• Asah one AMAZING lil man
  Nov 24, 2008 10:00 AM

  Meet Asah he was born with a genetic disorder Velocardiofacial syndrome (VCFS) and Tetralogy of Fallot 1.Pulmonary Stenosis 2. Ventricular Septal Defect (VSD) 3. Overriding Aorta 4. Right Ventricular Hypertrophy Asah had two major heart surgeries already he is a brave little boy who continues to defy all odds!!! myspace.com/heartsforasah

• Quinn Bradlee: A New Kind of Facebook, for Young Adults with Learning Disabilities
  Nov 21, 2008 1:49 PM

  Excerpt ...I was later diagnosed with Velo-Cardio Facial Syndrome, which is the second most common syndrome in America after Down 's syndrome. VCFS is characterized by 30 different features, some of the most common of which are heart defects, distinct facial characteristics,... Source Info Huffington Post Related Topics
  http://www.huffingtonpost.com/quinn-bradlee/a-new-kind-of-facebook-fo_b_145544.html

• Anna Leigh
  Oct 16, 2008 2:06 PM

  Anna Leigh

• Teralynn
  Oct 14, 2008 11:38 AM

  She was playing @ Chick Fil A.

• Tearlynn dancing
  Oct 7, 2008 1:09 PM

  Teralynn dancing to Thin Lizzy

• TERALYNN
  Jun 27, 2008 9:59 PM

  MY BABY GIRL that was born with 22q11.2 Deletion Syndrome aka DiGeorge Syndrome or VeloCardioFacial Syndrome. www.22q.org www.vcfsef.org Teralynn's symptoms: Ventricular Septal Defect Hypocalcemia Submucous Cleft Palate Velopharyngeal Insufficiency Retrognathia Microcephaly Small Protuberant, cup-shaped ears Narrow external ear canals Mild developmental delay Umbilical Hernia Nasal vomiting Severe articulation impairment Hypernasality Mild growth deficiency, relative small stature Joint ...

• Teralynn talking
  Apr 21, 2008 10:09 PM

  This is just a clip on how she sounds when she talks. Please excuse the brief yelling in the background it was a bedtime battle with Destini. Teralynn has 22q11.2 DS and a cleft palate.

• Please send Jasmine to Disneyland
  Mar 15, 2008 2:54 AM

  Excerpt ...holiday available at Justgiving: The page was created by Max Appeal, the UK charity supporting families with DiGeorge/ VCFS/ 22q11 syndrome, and is fully supported by Sam and Ben Beedles on behalf of Jasmine. Please donate if you can! thank you for commenting... Source Info Times Online Related Topics
  http://timesonline.typepad.com/india_knight/2008/03/please-send-jas.html

• Life With VCFS Part 1
  Aug 23, 2007 10:22 AM

  VCFS stands for: Velo Cardio Facial Syndrome Part 1 of 3

• Life With VCFS Part 2
  Aug 23, 2007 10:01 AM

  VCFS stands for: Velo Cardio Facial Syndrome Part 2 of 3

• Life With VCFS Part 3
  Aug 23, 2007 9:45 AM

  VCFS stands for: Velo Cardio Facial Syndrome Part 3 of 3

• BehindTheMedspeak: Velo-Cardio-Facial Syndrome (VCFS)
  Jul 6, 2007 1:50 PM

  Excerpt ...Bradlee's reaction is the same many have upon learning about VCFS, the second-most-common genetic syndrome after Down syndrome. VCFS advocates hope to educate people about the syndrome to promote research and detection. Bradlee, now 25 and an aspiring filmmaker,... Source Info bookofjoe
  http://www.bookofjoe.com/2007/07/behindthemeds-4.html

• Diagnosing VCFS Difficult Due To Hidden Symptoms
  Nov 26, 2006 1:33 PM

  Excerpt ...was." Neither did John's pediatrician. It took years of testing, and the right specialist to unlock the mystery: VCFS. Next to Down syndrome, it is the most common genetic disorder. "It was devastating, too, to know that your child now all the sudden has a... Source Info WCCO
  http://wcco.com/health/local_story_330162642.html