Recent Event Highlights: My skin has a story, Listen!, Baby born with rare genetic skin disorder dies - The Nation, Pakistan, The FIRST Story-Part 1, Harlequin Ichthyosis: The Rarest Type of Baby Skin Disease, STRANGE CHILD IN PAKISTAN, Baby born with rare genetic skin disorder - The News International, and 78 more...
Created by dipity on Oct 16, 2008
Last updated: 10/24/10 at 04:17 PM
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Baby born with rare genetic skin disorder diesThe Nation, PakistanISLAMABAD (APP) - A child with a very rare genetic skin disorder Harlequin-type ichthyosis famous with Tiger Baby name died Tuesday 11 days after birth. ...
This is the 1st of a 2-part series that was filmed at the 2008 National Family Conference in Chicago, Illinois. This video provides an introduction to the Foundation for Ichthyosis and Related Skin Types, Inc. and illustrates the importance of this organization and the family conferences.
Other names of this disease are ichthyosis congenita,keratosis diffusa fetalis, harlequin ichthyosis, ichthosis fetalis or simply harlequin fetus. It is severe form of congenital skin disease characterized by the thickening of the outer layer of the skin (keratin). Consequently, the skin may look like scales of a snake which is reddish in color with crack almost everywhere making it painful for the baby and susceptible to bacterial infections. For more information about this disease click on this link: www.babybottles.org.uk
child suffering from Harlequin ichthyosis born in gilgit pakistan on friday 5th of march 2010 first case of this disease was found in 1700
Baby born with rare genetic skin disorderThe News International“The baby is simply affected by a skin disease medically known as Harlequin-type ichthyosis, nothing so unusual,” said the doctor, adding that he himself ...and more »
Harlequin Ichthyosis is a very rare, incurable, genetic skin condition. In it, the skin grows far faster than normal. The whole body becomes completely encased in a very thickened, scaly suit of skin armour. The skin becomes very tight causing restriction of movement of the arms and legs and, particularly, the fingers and toes. The face is deformed, the eyelids are inverted, the ears are bound down, and the mouth is very tight.
izmirde ölü olarak doğan insan başlı keçi ................. Doğumlardan birinde çok nadir görülen 'malformasyon' (acaibat / garip oluşum bozukluğu) vakasıyla karşılaşıldı. Oğlaklardan birinin yüzünün insan simasını andırması, şaşkınlığa sebep oldu. Oğlakların tek tırnaklı oldukları da ifade edildi. "snake baby" Unpredictable "Harlequin-type ichthyosis Baby"Depleted,Uranium, Iraq, Weapons, Indiscriminate, Mass, Destruction, Manhattan Project,x files,scarry baby,scully,
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The patient didn't have a quick cure, it took more or less a year for his skin to change completely and for the fish scales-like lesions to disappear. His skin was very dry, was terribly itchy, and he could not control himself and this was damaging his contact with patients. He was a nurse assistant. With the auto-hemotherapy treatment, he was gradually getting better, it is true that I also gave him vitamin E, medicines that work in the skin, vitamin A, but auto-hemotherapy was what really worked. I also prescribed minerals because his skin had no vitality at all, it was dry, all wrinkled and with raised spots as if they were fish scales. This was the only case of ichthyosis I had. I don't remember any other case of ichthyosis so clear as this one.
الطفل المهرج - harlequin fetus (sudan-portsudan hospital) ولد هذا الطفل بمستشفى الولادة ببورتسودان بتاريخ 18-10-2009 بهذا التشوه الخلقي النادر ويعرف ب (الطفل المهرج او الطفل الثعباني ) ولقد توفي في وحدة ا لعناية بحديثي الولادة بعد 3 ايام من ولادته التي تمت بعملية قيصرية طارئة
This video had traffic driven by youtubejumpstart.net Watch Live TV online for FREE streamdirecttv.net ---------The Girls with too much Skin------------- Every morning at 5 without fail, Lucy and Hannah Betts from Great Yarmouth begin a punishing but life saving ritual. Helped by their mother Jan, they soak for two hours in the bath, scrubbing their skin until it is raw, to remove the extra hardened layers that have formed overnight, and then covering themselves with a thick, greasy barrier of protective cream. The whole process is repeated at bedtime. The Betts sisters suffer from Harlequin Ichthyosis, a rare genetic condition for which there is no cure. Harlequin sufferers grow more skin overnight than a normal person does in two weeks. As it grows, their skin forms a thick, tight, crust that can crack open, allowing infection to enter if left untreated. ---------World´s first Bionic Man------------- Being the first recipient of a bionic arm, Jesse Sullivan is the world's first bionic man. He lost his arm when an accident happen while working as a high-power electrical lineman. The accident caused his two arms. With a bionic arm from the innovative "Bionic" research at the Rehabilitation Institute of Chicago, Jesse, is able to do things he couldn't do after the accident. Developed within the Neural Engineering Center for Artificial Limbs (NECAL) at RIC, Todd Kuiken, MD, phd, pioneered the muscle reinnervation procedure which takes an amputee's own nerves and connects ...
My first pet bunny (: Got him last Monday. He is a 10 month old, Harlequin rabbit. (:
It's a follow up to my other Harlequin Icthyosis video. And a beginning/opening for any upcoming disease-information videos I'm making. :] Once again thank you for the support & let me know if you have a specific disorder or disease I should look up.
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extra hardened layers that have formed overnight, and then covering themselves with a thick, greasy barrier of protective cream. The whole process is repeated at bedtime. The Betts sisters suffer from Harlequin Ichthyosis, a rare genetic condition for which there is no cure. Harlequin sufferers grow more skin overnight than a normal person does in two weeks. As it grows, their skin forms a thick, tight, crust that can crack open, allowing infection to enter if left untreated. ---------World´ ...
Το παιδι αυτο το δυσμοιρο δεν ειναι ουτε ελοχιμ ουτε νεφελιμ ουτε τιποτε. Ειναι ενα δυστυχο πλασμα που αγωνιζεται να ζησει όπως όλοι μας. Πασχει απο ιχθυοση τυπου αρλεκινου. Πολυ σπανια γενετικη ασθενεια, όλο το δερμα ανοιγει και φαινεται το κρεας , οφειλεται στην ελλειψη ενος γονιδιου. Μονο ενα παιδι ανατον κοσμο εχει επιβιωσει και το βλεπετε εδω. Ας σεβαστουμε τη μνημη αυτων των μωρων και ας μην τα κοροϊδευουμε, δεν μας καναν τιποτα στην τελικη. Δεν υπαρχει θεραπεια μονο η πλαστικη ...
Jonk the Enchanter at his shenanigans again.
A look at Harlequin Ichthyosis and what is does to the human skin. A ton of videos on here are labeled alien or snake baby and they should be ashamed that they are mocking little children in severe pain. The article below discusses Harlequin and its effects and surivivors. http://www.associatedcontent.com/article/1569829/a_look_at_the_rare_skin_disease_harlequin.html?cat=70 ...
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It's Whitters! www.youtube.com I was standing in front of the TV (with it on mute so it wouldn't ruin the audio, of course) because I wanted to see how the lighting was, and I like it more than my actual lights in my room. Question: What is your favorite girl scout cookie? Challenge: Film your vlog in a fort/clubhouse that you build. Dice: 1 = Karl!! Oh! And Happy St Patrick's Day! xd
http://ghr.nlm.nih.gov/condition=harlequinichthyosis There's the link to the website I was reading off of. Click it and try to learn something. To clear it up, I may be catholic but I support everyone and all of their religions out there. I just don't support idiots who run around posting those stupid comments like "OHMYGODYOURDUMBFORYOURCHOICEINRELIGION". No, I have never dealt with a Harlequin child in my family; and I hope none of you must watch this child suffer as well. It's a terrible occurance, and it's something that should never go and be put upon anyone in the world. On the back of my head is a hat, so my hair isn't black randomly out of all the brown. Yes I'm wearing make up who cares almost everyone does now a days. Now I'm not American, I just pick up accents very easily. It's a curse, in my opinion. If you have questions, read the page I'm providing. If they aren't there you can ask me and I'll do my best to answer them.
Speed drawing of a Harlequin Tuskfish done in color pastels. Kingdom: Animalia Phylum: Chordata Subphylum: Vertebrata Class: Actinopterygii Order: Perciformes Family: Labridae Genus: Choerodon Species: C. fasciatus Common Name : Harlequin Tuskfish Life span : 8 or more years Typical Size : 10" (25 cm) to 12" (30cm) Water Parameters : ph: 8.1 - 8.4, Temperature: 77°F - 82°F (25°C - 28°C), Specific Gravity: 1.020 - 1.025, dkh: 8 - 12° Origin / Habitat : Reefs of the Western Pacific, Indonesia, the Philippines and near Queensland, Australia. Found on coral reefs. Juveniles live on steep reef walls. Adults sometimes live in small groups around overhangs and caves on reef slopes. Reproduction : They are open water egg scatterers. Diet : Mostly carnivorous. The Harlequin Tuskfish has very strong, pointed fang-like teeth, the tips of which are bright blue in color. It uses these to crush mollusks, crustaceans, bristle worms, urchins and starfish. visit: www.atomicus5000.com
Un niño con ictiosis tipo arlequín Algunas cosas que usted necesita 1: NO a un niño entre los hermanos, es simplemente un defecto de nacimiento. 2: NO es falso o real un extranjero. 3: Se mueren dentro de muy poco tiempo. A child with harlequin type ichthyosis A few things you need to know_ 1: NOT a child between siblings, it is merely a birth defect. 2: It is NOT fake OR an actual alien. 3: They die withing very short time.
Kyle gets punched in the face for a dollar at a show.
Kyle gets punched in the face for a dollar at a show.
ATTENTION VERY STRONG SCENES, TO SEE VIDEO UNDER HIS(HER,YOUR) OWN(PROPER) RISK
The news of an unusual alien-like baby born in China has received an intensive coverage in the media recently. Ms. Li Hui-Ying, a village from Chinas Jiangxi Province, gave birth to a boy with frogs eyes. The baby also had big bumps on his head and even a small tail on his bottom. The boy does not have any eating, drinking or sleeping disorders, but his parents still try to bring him to treat in the hospital. However, all the hospitals that the parents have been to so far refuse to accept the weird patient claiming that they have never had such an unusual incident in their experience. Woman gives birth to mutant baby in Malaysia Woman gives birth to mutant baby in Malaysia BREAKING NEWS Bush gets his farewell kiss from Iraqi journalist Mysteries of modern times will never be unveiled USA proudly displays its double standards Russian girl from Siberia conquers the world More... Another shocking incident took place in Malaysia not so long ago. A woman gave birth to a baby with its eyes turned inside out. The baby has no ears and no nose, has hooves instead of hands. There can be no words found to describe the sufferings of the poor baby. Click here to see the video Also read: Russian woman gives birth to Cyclops child Such terrible abnormalities can be explained with the phenomenon known as Harlequin Ichthyosis. It is a skin disease, is the most severe form of congenital ichthyosis, characterized by a thickening of the keratin layer in fetal human skin. In sufferers of the disease, the skin contains massive, diamond-shaped scales, and tends to have a reddish color. In addition, the eyes, ears, mouth, and other appendages may be abnormally contracted. The scaly keratin greatly limits the child's movement. Because the skin is cracked where normal skin would fold, it is easily pregnable by bacteria and other contaminants, resulting in serious risk of fatal infection. Sufferers are known as harlequin fetuses, harlequin babies, or harlequins. The harlequin-type designation comes from both the baby's apparent facial expression and the diamond-shape of the scales (resembling the costume of Arlecchino), which are caused by severe hyperkeratosis. The disease can be diagnosed in the uterus by way of fetal skin biopsy or by morphologic analysis of amniotic fluid cells obtained by amniocentesis. In addition, doctors can now usually recognize common features of the disease through ultrasound, and follow up with 3D ultrasound to diagnose the condition. In the past, the disorder was invariably fatal, whether due to dehydration, infection (sepsis), restricted breathing due to the plating, or other related causes. The most common cause of death was systemic infection and sufferers rarely survived for more than a few days. However, there have been improvements in care, most notably the drug Isotrex. Some patients have survived into adolescence and, in very rare cases, lived to adulthood Become a member of Pravda.ru online community
This is creepy, disturbing, sad and traggic all at once. It is also proof that we live in a fallen creation which has been God's Judgment for our sinful nature. "Men are not victims, they are rebels." -Paul Washer(not sure if quote is exact) ***About The Video*** THE BABY SUFFERS FROM A DISEASE CALLED Harlequin-type ichthyosis Sufferers are known as harlequin fetuses, harlequin babies, or harlequins. ( Fish-Baby also Snake-Baby) The disease has been known since around 1750, and was first described in the diary of Rev. Oliver Hart: "On Thursday, April þe 5, 1750, I went to see a most deplorable object of a child, born the night before of one Mary Evans in 'Chas'town. It was surprising to all who beheld it, and I scarcely know how to describe it. The skin was dry and hard and seemed to be cracked in many places, somewhat resembling the scales of a fish. The mouth was large and round and open. It had no external nose, but two holes where the nose should have been. The eyes appeared to be lumps of coagulated blood, turned out, about the bigness of a plum, ghastly to behold. It had no external ears, but holes where the ears should be. The hands and feet appeared to be swollen, were cramped up and felt quite hard. The back part of the head was much open. It made a strange kind of noise, very low, which I cannot describe. It lived about forty-eight hours and was alive when I saw it." OVER A HUNDRED CASES HAVE BEEN REPORTED WORLDWIDE IN MODERN TIMES. Neither gender nor ethnicity seem to affect the likelihood of a child having the disorder. A disproportionately high number of children have consanguineous parents. Those from families with a history of severe skin disorders may have a higher risk of birthing a harlequin child. http://en.wikipedia.org/wiki/Harlequin_type_ichthyosishttp://en.wikipedia.org/wiki/Harlequin_type_ichthyosis
This is a video of a teenager with harlequin ichthyosis.
Enjoy =)! Artist: James The Puppet Demo: Smile Song: Harlequin type Ichthyosis Copyright: Nick Staffas
Episodio 2: Una voz en la fuga cósmica Contenido: La historia de los Heike y la selección evolutiva artificial de los cangrejos que parecen samurais. La evolución biológica a través de la selección natural; de las bacterias al hombre. Especulación sobre la existencia de vida en las nubes jovianas. Creación de las "moleculas de la vida" en el laboratorio. El desarrollo de la vida en el Calendario Cósmico y la explosión cámbrica. Fuente: es.wikipedia.org Episode 2: One Voice in the Cosmic Fugue Contents: 1. Opening 2. Spaceship Cosmic Matter 3. Heike Crab The story of the Heike crab and artificial selection of crabs resembling samurai warriors 4. Artificial Selection 5. Natural Selection Evolution through natural selection 6. Watchmaker Intelligent design 7. Cosmic Calendar The development of life on the Cosmic Calendar, and the Cambrian explosion DNA and its functions in growth, replication and repair; mutations 8. Evolution Animated evolution, from microbes to man 9. Kew Gardens-DNA Journey into the cell nucleus 10. Miller-Urey Experiment Common biochemistry of terrestrial organisms Creation of the molecules of life in the laboratory; the Miller-Urey experiment 11. Alien Life Speculation about life in Jupiter's clouds 12. Cosmos Update 10 years later RNA can control chemical reactions as well as reproduce itself. Comets have a lot of organic molecules in them. Source: en.wikipedia.org
1- Celestial Excruitiations 2-Fourth Blessed Gorge 3- Lascivious Embludgeonment (Of A Harlequin Fetus )
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BJ McCombs was severely burned in a fire at the age of 18 months, explains the support group set up on MySpace after photos McCombs's parents posted of their late son.Full Digg post: http://digg.com/world_news/MySpace_deletes_burn_victim_s_photos_for_being_offensive
No sir, I am not dead. Been meaning to do this for awhile. Pictured here is the late Owen, a boy born with Harlequin Ichthyosis in 2003. Not long after, he was suffocated by his mentally ill father, who thought of him as a sign of the devil. He was charged with first degree murder and subsequently given a lethal injection, cleansing the world of some scum with supposed demon seed.
Also the FIRST conference 2008. For more Information on Ichthyosis go to ichthyosis.com or scalyskin.org PS, Jeff: Sorry your song is sped up....weird intrest of mine, butchering good songs like that...:) But I did it to Ozzy, too...so feel better:) :) ****IF ANYONE IN THIS VIDEO OBJECTS TO THEIR PICTURE BEING SHOWN, CONTACT ME AND I WILL REMOVE IT****
This is an excerpt from the TV programme "The Girls With Too Much Skin" from the series "Extraordinary People". You can find more information about harlequin ichthyosis defect on wikipedia ( http://en.wikipedia.org/wiki/Harlequin_ichthyosis ). Check out related videos to see the actual infants or type "Harlequin Ichthyosis" in Google Image Search.
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THE BABY SUFFERS FROM A DISEASE CALLED Harlequin-type ichthyosis Sufferers are known as harlequin fetuses, harlequin babies, or harlequins. ( Fish-Baby also Snake-Baby) The disease has been known since around 1750, and was first described in the diary of Rev. Oliver Hart: "On Thursday, April þe 5, 1750, I went to see a most deplorable object of a child, born the night before of one Mary Evans in 'Chas'town. It was surprising to all who beheld it, and I scarcely know how to describe it. The skin was dry and hard and seemed to be cracked in many places, somewhat resembling the scales of a fish. The mouth was large and round and open. It had no external nose, but two holes where the nose should have been. The eyes appeared to be lumps of coagulated blood, turned out, about the bigness of a plum, ghastly to behold. It had no external ears, but holes where the ears should be. The hands and feet appeared to be swollen, were cramped up and felt quite hard. The back part of the head was much open. It made a strange kind of noise, very low, which I cannot describe. It lived about forty-eight hours and was alive when I saw it." OVER A HUNDRED CASES HAVE BEEN REPORTED WORLDWIDE IN MODERN TIMES. Neither gender nor ethnicity seem to affect the likelihood of a child having the disorder. A disproportionately high number of children have consanguineous parents. Those from families with a history of severe skin disorders may have a higher risk of birthing a harlequin child.