Recent Event Highlights: Ruby Rex - Williams Syndrome, Ruby Rex & baby Ash - Williams Syndrome, williams syndrome, Emotions - Williams Syndrome (HD 1080p), Williams Syndrome Awareness, Williams Syndrome - Emotions (Noisecontrollers Remix) (No lyrics), and 35 more...
Created by dipity on Feb 2, 2011
Last updated: 07/30/11 at 05:03 AM
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Sometimes the only way Ruby was happy was when you put her new baby sister next to her. She would cry and want her sister with her and would hush right up when you laid them together. They loved each other very much. Ruby passed away June 15, 2009 after surgeries and a stroke from Williams Syndrome. www.williams-syndrome.org If you or your family member has Williams and you would like to add me on Facebook, I am a big advocate, so send me a message. Ruby didn't get diagnosed until she was almost 2. They saw she needed heart surgery as many WS kids do. Ruby had the surgery, and the doctors didn't wait long enough to close her up, they rushed right into it and it caused her to crash. It took them 45 minutes to bring her back, which caused a stroke, which caused her to be bedridden for the rest of her time on Earth. After that she could not walk, talk, or eat as she had before. She lived that way for a little over a year before she passed away. Her heart gave out on her. It was just her time to go. I went to check on her after I put her to bed and she open her eyes and looked at me and I got her tucked in, and went to lay down. A few minutes after I laid down, I jerked so hard I almost fell off the bed, and I went straight to sleep. When I woke up I went to check on her like always before I did anything else and she was gone. It's been a long hard road for us, for in the very short time she was here, she was such a joy and a blessing to us. I ache for her every day, and I ...
This is baby Ash with her big sister Ruby. Ruby had Williams Syndrome. She passed away June 15, 2009 and we miss her so terribly. This is to help remember her. Her little sister loved her so much, and to this day still talks to her. Ruby didn't get diagnosed until she was almost 2. They saw she needed heart surgery as many WS kids do. Ruby had the surgery, and the doctors didn't wait long enough to close her up, they rushed right into it and it caused her to crash. It took them 45 minutes to bring her back, which caused a stroke, which caused her to be bedridden for the rest of her time on Earth. After that she could not walk, talk, or eat as she had before. She lived that way for a little over a year before she passed away. Her heart gave out on her. It was just her time to go. I went to check on her after I put her to bed and she open her eyes and looked at me and I got her tucked in, and went to lay down. A few minutes after I laid down, I jerked so hard I almost fell off the bed, and I went straight to sleep. When I woke up I went to check on her like always before I did anything else and she was gone. It's been a long hard road for us, for in the very short time she was here, she was such a joy and a blessing to us. I ache for her every day, and I have been spending my days spreading the word of her story and of Williams Syndrome to all that will listen. I am a big advocate for Williams, and am planning on doing a walk in Kentucky next year, as no one does them in ...
speech
Track #2 Defqon 1 (2009), CD 1
The Arizona Canyon Region Spring picnic was organized for families and individuals born with the genetic disorder Williams Syndrome. For more information on Williams Syndrome or to help spread awareness, visit: www.williams-syndrome.org This video was made to show the loving and special aspect of individuals with Williams Syndrome. Through the support of friends and family, this disability can truly be a gift of love and learning. Thank you to all of the families that share in the understanding of this genetic disorder. With all of your help, we can continue to grow and spread the word in order to make life a little better for all of us.
Just for promotion.
During our study and research session with Dr. Carolyn Mervis and Dr. Colleen Morris, this was my and my little Ruby's play session together. This is rare footage I have with her. Ruby had Williams Syndrome and was diagnosed at the age of 2 years old. She passed away on the early morning of June 15th, 2009 after spending a little over a year of her life bed-ridden after suffering a stroke under the hands of a team of surgeons. Her memory is forever etched in my mind and there is no way to comprehend the loss of a child until you have dealt with it first hand. I miss you so much, sweet girl. I will spend every day of my life spreading the of your cause and your memory. Mommy loves you! I am a strong advocate for WIlliams Syndrome. I had some bracelets made to help spread the word of this cause, feel free to add me on facebook or contact me for more information. www.facebook.com kytrader007@yahoo.com
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MAKE NOISE NOT WAR !!! One of My Favorites Lyrics: Secrets The collector of secrets The collector of secrets Secrets The collector of secrets I can't know much about you What I know is that You need food and water and sleep to survive And the rest, that's you So what's that all about The collector of secrets What's that all about A bunch of thoughts A few worries, perhaps a few secrets Isn't it time you told somebody? The collector of secrets Secrets The collector of secrets
Presentation on Williams Syndrome for Lee Ann Jung's EDS 522 Working with Families of Children with Special Needs at the University of Kentucky.
-= DefQon 1 Festival 2009 =- #2. Williams Syndrome - Emotions
Williams Syndrome 1
HARDSTYLE MIDI Bioweapon - Move Your Body / Noisecontrollers - Confucius / Williams Syndrome - Secrets
All music is royalty free! Ignore Below: This mix is royalty free and mixed by me and purchased ... Ignore Belowwwws: range of ish ishybadboy runescape bs bh pking bounty hunter pking bountyhunter bs bh rs runescape jagex ltd upload videos p hat purple hat clan purple hats bh clans runescape di rs elvemage kids ranqe soz owned defil3d elf mage pka i ayzee i joshinator48 eazy e369 runescape rs rs i ayzee i wildy owns1 spanjol 91 rs elvewatford runescape pking p2p f2p member bh bounty hunter team cape rs jagex range of ish pk vid 14 13 12 11 10 9 8 7 6 5 4 3 2 1 0 20 21 22 23 24 25 16 17 20 18 19 jagex rs 99 98 97 96 95 94 93 92 91 90 85 70 magic mage str strength ranging range magic hp hitpoints josh rs max andrew goner rune wildyowns1 tupac ignore this rs dis jagex songs music rock rap hiphop bs bh bounty hunter pking bh pking runescape wild gone wildy gone never coming back jagex dueling vid range of ish dueling vid i vmser ii ayzee i defil3d kids ranqe elvemage i kasoy i fuzzy002005 zezima uloveme the old nite 45 46 passed away died runescape cancer jagex views comments subsribe coventry uk england msn jagex usa amercia pk vid bounty hunter range of ish pk vid 13 bounty hunter pking vid rs jagex p2p magic f2p p2p zezima kdis ranqe soz owned ishybadboy ishybadboy range of ish dark bow bh bs not bounty hunter rs 1 def defence 1 bloodhoun34 bloodhoun runescape party hat scam hacks runescape bounty hunter pk pked member dds spec armadyl godsword bandos godsword pk ice ...
Goodgreef Xtra Hard - Mixed By Showtek Cd2 - Track 9
Gloria Lenhoff lends her joyous, signature style to familiar tunes such as "Dream" and "It's a Small World" accompanied by her accordion. The finale features other Williams Syndrome colleagues taking the stage with Gloria for an endearing group number!
Accompanied by her accordion and her father Howard, Gloria Lenhoff concludes her performance at St Peters Episcopal church with this rousing rendition of the Jewish classic "Hava Nagila (Hora)"
Gloria Lenhoff tackles the difficult piece "Knoxville, Summer of 1915" and turns in a stunning performance!
Part 2 of Gloria Lenhoff's stirring rendition of "Shepherd on the Rock" live!
Thunder by Williams Syndrome
William Syndrome - Emotions
Williams Syndrome - Secrets - Vinyl
Williams Syndrome - Emotions - Vinyl
WS is another disability requiring information to help children who have this disability. One of the misleading characteristics of a WS child is their communication and verbal skills are excellent, it tends to mask their disability. This program features Sandra Carter, BS, Psychology, Special Education teacher who works daily with WS children and adults. She provides excellent information on the disability and explains how to work with children who may have this disability. Also featured are Lori, Dennis and Chris, three people with Williams Syndrome. Dr. Ruth Smith, University Researcher and Mental Retardation Expert provides additional information and experience about this illness and what teachers can do to help these youngsters with WS. SafetyInstruction.com childhood development training series. www.safetyinstruction.com
Final presentation for Theo-Comm. Williams syndrome analyzied
Er mag gedanst worden
Rammen dang
Alex is 17 years old and has Williams Syndrome and a congenital heart defect called Tetralogy of Fallot. He also has Acute Pulmonary Stenosis. Alex has undergone many heart surgeries including open heart surgery at The hospital for Sick Children in Toronto Canada. He loves school and really loves music. His favourite instruments are drums and guitars. He also loves listening to the church bells ringing! Alex is a super, happy and brave young man :) (I am playing to The Killers song Human)
This is a realy good track from Williams Syndrome so plizz enjoy ;)
Williams Syndrome - Limbo
Artist: Williams Syndrome Song: Secrets Album: Hardbass Chapter 16 Genre: Hardstyle Info: Just released with alot of new songs on the Album..! Please Rate & Subscribe!!
Williams Syndrome - Emotions
Willams Syndrom - Limbo
New track from Williams Syndrome (Noisecontrollers)
New track from Williams Syndrome (Noisecontrollers)
Too dumb for NYC, too Ugly for LA
Dr. Daniel Levitin talks about Williams Syndrome.
Daniel Levitin talks about Williams Syndrome on CTV's Pulse News. Broadcast Date: December 2001 Add Daniel Levitin on Facebook: www.facebook.com
Redmond Burke MD, Chief of Pediatric Cardiovascular Surgery at Miami Children's Hospital. We demonstrate the surgical repair of congenital heart defects, and show the postoperative recovery process. The program website is www.pediatricheartsurgery.com, Contact Doctor Burke at Redmond111@aol.com Cardiac Program Website: www.pediatricheartsurgery.com Wikipedia en.wikipedia.org Youtube channel: www.youtube.com Facebook: www.facebook.com Scribd: www.scribd.com Myspace: www.myspace.com Linkdin: www.linkedin.com Twitter twitter.com
A report on Williams Syndrome
Noisecontrollers - The Williams Syndrome (Wavepuntcher Mash Up Mix)
Wiliams Syndrome - Thunder
Harrison is an Australian 3 year old boy that has Williams Syndrome. This movie shows him growing up from Birth to age 2 years 10 months.
Here is Chris Young at the Vanderbilt Williams Syndrome Camp on June 16. 2008 singing his new single "Voices."
Williams Syndrome Summer BBQ
Williams Syndrome girl piano 3
She is suffer from Williams Syndrome, we hope she have better furter.
She is suffer from Williams Syndrome
Boston University School of Medicine Presentation slide show
Payton saw Faith's video, so she had to send one Back
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